Providing Support for NEIDs With Pandora Org

• The president of the National NEID (chronic fatigue syndrome) non-profit whose members are heat intolerant.
• Testimonial with products - Lori from Pandora Org
• Story about NEIDs and why we're working with them
• ME/CFS Symptoms - Temperature control problems, including night sweats or cold sensitivity.
• Fibromyalgia Symptoms - Sound sensitivity, light sensitivity, temperature sensitivity

Last year, Polar Products noticed an order from an unfamiliar name - Pandora Org. After some research, our marketing manager Erin discovered that this was a blossoming non-profit organization that was split between Michigan and Florida. After some discussions and learning that those with NEIDs suffer from heat sensitivity, Polar Products wanted to help.

We are now looking forward to a new partnership with Pandora Org. 

Together we hope to help raise awareness for NEIDs and support those battling the diseases.

Look for a cooling vest program collaboration between Polar Products and Pandora Org in the near future!

What are Neuro-Endocrine-Immune Diseases?
"Neuro-endocrine-immune diseases (NEIDs) are chronic multi-system illnesses that take a dramatic toll on society, individuals and their families. They include myalgic encephalomyelitis / chronic fatigue syndrome, fibromyalgia syndrome, chronic tick-borne infections, multiple chemical sensitivities / environmental illness and Gulf War illnesses." (from www.pandoraorg.net)

To learn more about a specific disease, please visit the About NEIDs section of Pandora Org's website.

The Pandora Org Mission/Vision:

"Through the following efforts, we seek to alleviate the suffering caused by neuro-endocrine-immune diseases:

• Advocating for improving patient quality of life
• Community awareness projects
• Patient education programs and conferences
• Physician education programs
• Research grants
• Partnerships with other patient organizations
• Collaborations with academia and biotech industry

We advocate for and work toward establishing centers of excellence for research, clinical care, physician education and government services assistance for NEIDs patients and their families."

For more information, please visit Pandora Org, Facebook, Twitter or YouTube.

While working with the lady from NEIDs (Chronic Fatigue Syndrome) she mentioned 

Orthostatic Intolerance as a condition that cooling vests can help with and that most people with 

NEIDs have. I looked it up, be a good idea for everyone to know the term:

http://en.wikipedia.org/wiki/Orthostatic_intolerance

Bill

Orthostatic Intolerance

What are neuro-endocrine-immune diseases?

Neuro-endocrine-immune diseases (NEIDs) are chronic multi-system illnesses that take a dramatic toll on society, individuals and their families. They include myalgic encephalomyelitis / chronic fatigue syndrome,fibromyalgia syndrome, chronic tick-borne infections, multiple chemical sensitivities / environmental illnessand Gulf War illnesses. Millions of Americans suffer from NEIDs.
Many of these patients cannot find knowledgeable healthcare, face obstacles in accessing social services and do not have the physical and emotional strength to be their own advocates.


The good news is that NEIDs are now receiving state and national attention. More good news is that scientific breakthroughs have brought a greater understanding of the biological abnormalities that may explain the debilitating symptoms associated with NEIDs. Even better, PANDORA Org and other patient organizations are now working together to advocate for physician education, increased government-funded research and government policies that will improve these patients' quality of life.

NASA / MS

All circulating cooling systems started with NASA

From MSAA’s “Multiple Sclerosis and Cooling, Third Edition:

http://www.mymsaa.org/publications/cooling/#space

Space Technology Refines Cooling

The National Aeronautics and Space Administration (NASA) developed space suits to protect astronauts from the hazards of space. A space suit, however, will also trap heat inside the suit. To stabilize an astronaut's body temperature, space suits are equipped with an undergarment containing a network of small tubes held against the body. A chilled liquid is pumped through these tubes, removing the body's heat by heat transfer between the skin and the tubes. These garments are known as liquid-cooled garments (LCG's), but are often referred to as "cool suits." Cool suits are now used in a variety of industrial and military applications.

Known for their expertise with LCG's, NASA scientists continued to refine and adapt this technology for the advancement of biomedical research. These advancements include cooling systems for cancer patients undergoing chemotherapy, children who suffer from HED (insufficient sweat glands), and those
diagnosed with MS.

MSAA Advances Cooling Technology

As MSAA and NASA continued to expand the science of cooling and MS, both agencies realized the need to pool resources and accelerate the goal of bringing symptom relief to thousands of people with MS. On May 23, 1994, officials from MSAA and NASA signed a "Memorandum of Understanding" to establish a framework for cooperative efforts.

This provided a springboard from which many joint endeavors have been completed. These include national workshops, equipment evaluations, and finally, a national clinical research study funded by NASA, in which MSAA staff played a significant role.

Enhancement of Cognitive Processing by Multiple Sclerosis Patients Using Liquid Cooling Technology: A Case Study

L.D. Montgomery, R.W. Montgomery, Y.E. Ku, Lockheed Martin Engineering & Sciences Company; and NASA Ames Research Center, Moffett Field, California (completed in 1997).

A Randomized Controlled Study of the Acute and Chronic Effects of Cooling Therapy for MS

S.R. Schwid, MD; M.D. Petrie, RN (University of Rochester, Rochester, New York); R. Murray, MD, Jennifer Leitch, RN (Rocky Mountain MS Center, Englewood, Colorado); J. Bowen, MD, A. Alquist, PhD (University of Washington, Seattle, Washington);
R.G. Pellegrino, MD, PhD, Maria Dawn Milan, RN (Institute for Neurology and Neuroscience Research, Hot Springs, Arkansas);
Adam Roberts, Judith Harper-Bennie (Multiple Sclerosis Association of America); R. Guisado, MD (Center for Neurodiagnostic Research, San Jose, California); B. Luna, MS, Leslie Montgomery, PhD, Richard Lamparter, MS, Yu-Tsuan Ku, MS, Hank Lee, BS, Danielle Goldwater, MD (NASA Ames Research Center, Moffett Field, California); G. Cutter, PhD (AMC Cancer Research Center, Denver, Colorado, independent biostatistician); Bruce Webbon, PhD (NASA program manager and principal investigator), Neurology, 2003, 60, pp. 1955-1960.

https://www.polarproducts.com/MS