- The president of the National NEID (chronic fatigue syndrome) non-profit whose members are heat intolerant.
- Testimonial with products - Lori from Pandora Org
- Story about NEIDs and why we're working with them
- ME/CFS Symptoms - Temperature control problems, including night sweats or cold sensitivity.
- Fibromyalgia Symptoms - Sound sensitivity, light sensitivity, temperature sensitivity
Last year, Polar Products noticed an order from an unfamiliar name - Pandora Org. After some research, our marketing manager Erin discovered that this was a blossoming non-profit organization that was split between Michigan and Florida. After some discussions and learning that those with NEIDs suffer from heat sensitivity, Polar Products wanted to help.
We are now looking forward to a new partnership with Pandora Org.
Together we hope to help raise awareness for NEIDs and support those battling the diseases.
Look for a cooling vest program collaboration between Polar Products and Pandora Org in the near future!
What are Neuro-Endocrine-Immune Diseases?
"Neuro-endocrine-immune diseases (NEIDs) are chronic multi-system illnesses that take a dramatic toll on society, individuals and their families. They include myalgic encephalomyelitis / chronic fatigue syndrome, fibromyalgia syndrome, chronic tick-borne infections, multiple chemical sensitivities / environmental illness and Gulf War illnesses." (from www.pandoraorg.net)
"Neuro-endocrine-immune diseases (NEIDs) are chronic multi-system illnesses that take a dramatic toll on society, individuals and their families. They include myalgic encephalomyelitis / chronic fatigue syndrome, fibromyalgia syndrome, chronic tick-borne infections, multiple chemical sensitivities / environmental illness and Gulf War illnesses." (from www.pandoraorg.net)
To learn more about a specific disease, please visit the About NEIDs section of Pandora Org's website.
The Pandora Org Mission/Vision:
"Through the following efforts, we seek to alleviate the suffering caused by neuro-endocrine-immune diseases:
- Advocating for improving patient quality of life
- Community awareness projects
- Patient education programs and conferences
- Physician education programs
- Research grants
- Partnerships with other patient organizations
- Collaborations with academia and biotech industry
We advocate for and work toward establishing centers of excellence for research, clinical care, physician education and government services assistance for NEIDs patients and their families."
For more information, please visit Pandora Org, Facebook, Twitter or YouTube.
While working with the lady from NEIDs (Chronic Fatigue Syndrome) she mentioned
Orthostatic Intolerance as a condition that cooling vests can help with and that most people with
NEIDs have. I looked it up, be a good idea for everyone to know the term:
Bill
Orthostatic Intolerance
What are neuro-endocrine-immune diseases?
Neuro-endocrine-immune diseases (NEIDs) are chronic multi-system illnesses that take a dramatic toll on society, individuals and their families. They include myalgic encephalomyelitis / chronic fatigue syndrome,fibromyalgia syndrome, chronic tick-borne infections, multiple chemical sensitivities / environmental illnessand Gulf War illnesses. Millions of Americans suffer from NEIDs.
Many of these patients cannot find knowledgeable healthcare, face obstacles in accessing social services and do not have the physical and emotional strength to be their own advocates.
The good news is that NEIDs are now receiving state and national attention. More good news is that scientific breakthroughs have brought a greater understanding of the biological abnormalities that may explain the debilitating symptoms associated with NEIDs. Even better, PANDORA Org and other patient organizations are now working together to advocate for physician education, increased government-funded research and government policies that will improve these patients' quality of life.
What are neuro-endocrine-immune diseases?
Neuro-endocrine-immune diseases (NEIDs) are chronic multi-system illnesses that take a dramatic toll on society, individuals and their families. They include myalgic encephalomyelitis / chronic fatigue syndrome,fibromyalgia syndrome, chronic tick-borne infections, multiple chemical sensitivities / environmental illnessand Gulf War illnesses. Millions of Americans suffer from NEIDs.
Many of these patients cannot find knowledgeable healthcare, face obstacles in accessing social services and do not have the physical and emotional strength to be their own advocates.
The good news is that NEIDs are now receiving state and national attention. More good news is that scientific breakthroughs have brought a greater understanding of the biological abnormalities that may explain the debilitating symptoms associated with NEIDs. Even better, PANDORA Org and other patient organizations are now working together to advocate for physician education, increased government-funded research and government policies that will improve these patients' quality of life.
